I’m not in quite as bad shape but I also reacted badly to the vaccine. I get awful migraines after every shot/covid exposure lasting months and it’s become permanent since the last one. I quite literally have not had a single day free from migraines in 6 months and I’m completely intractable to every medication we’ve tried. like they’re talking about burning out various nerves in my face and neck to try and prevent them but it feels hopeless. I no longer get to have a social life and I’m struggling to keep a wfh job - I’m effectively bedridden all the time because of the side effects of migraines (dizziness, vertigo, muscle weakness, primarily), and I’ve been getting seizures for the past year.

I wish people would just do the bare minimum to protect people like us but I’ve mostly given up. just trying to get used to my new, extremely small world.

The uncertainty is awful. It took me ten years to get diagnosed with anything. I had so many doctors that thought I was just seeking pain pills. I had to beg a primary care physician to refer me to a rheumatologist. The rheumatologist guessed what I had within 5 minutes. A few blood tests, X-rays, and an MRI later and I had a diagnosis. Ten years and then someone guesses it in 5 minutes. Autoimmune diseases are weird like that.

I’m also incredibly pro-vax, but those things knock me on my ass for days. Seems pretty common for people with autoimmune diseases.

My shit started about two months after having Covid. Longgg before I got vaccinated. I think some people think it’s the vaccine because problems don’t tend to start right away when you have covid. It takes a while.

Thank you! :D