A very good friend of mine had her second psychotic episode this summer. She has started medication last week.
The first one was last summer. We initially went to a psychologist. He is part of a team that are against medications but in contact with psychiatrists. This team has a political background as well so money was not an issue. So we were 2 friends beside her with 24h hour “shifts”. For about 2 months I was every other day with her. The psychologist’s approach was not suitable for her case. He suggested for 2 trained people to go to her house on a daily basis so we (her friends) could take a breath, and for her to start going to group meetings. She thought that even us (her friends) were spies so having new people in her house was impossible, and going to a group meeting was also impossible because of all of these new people, but also because she wouldn’t get out of her house easily. And when she did, well that’s another story.
At that point and since their approach could not work, I would have expected him to suggest the psychiatrist. This never happened. Also, my friend, she didn’t want to go back to any sessions with him anymore (and I don’t blame her for that cause I was also present in these meetings). Still, she was positive to go to a psychiatrist. We found one that was suggested by another friend of ours. The anti-psychotic medication started working within a day or so, and all three of us could start to unwind a bit.
She continued the medication for a few months, but did not want to even consider going to do psychotherapy. By christmas, she was feeling so much better that she started smoking weed again, drinking alcohol among other substances I suppose. I am not sure because at the time we were not seeing each other much. It’s like we chose 2 opposite paths. She chose to go back to all the habits that gave her comfort since her teen years, which was two decades ago. I chose reevaluate everything so I won’t feel that lost again, and started psychotherapy for the second time in my life. We started seeing each other less and less.
Now that you have an overview of the situation maybe I could say a couple of things about my case. It’s relevant because I would like some input. It was not my first time to be the carer of someone. Sometimes I feel that most of my adult life I’ve been taking care of other people. I was the main carer for 3 other persons. I say “main” because everybody else, even if they showed up at first, they all at some point left. So it was for several times with this friend who is bipolar (during and after his episodes). I also had a partner for some years that was struggling with psychiatric issues but the diagnoses were many and very different. And another partner who had manic episodes. All of them are actually fine. They all gave up drugs, first. Btw I consider alcohol to be a drug as well, and I am not a straight edge kinda person myself.
My way of coping with the pressure I got from these situations was to do “work therapy” as I used to call it. I would work intensively and I felt that it was good for me. This time I knew “work therapy” would not do it. Thankfully at some point in the past I did go to psychotherapy for something totally unrelated and my experience was positive. This time I could say therapy is going even better.
Last time I saw her, it was a few months back. I was told about her incident by a common friend of ours. I am not sure I have the strength to be a carer at this point, I don’t even know if I can be in contact with her. This “work therapy” of mine had the long term effect of having all these previous experiences piled up, and did not contribute in resolving them. The last times we saw each other it kinda triggered all the pain, exhaustion and despair, that got accumulated by all these people I took care of. Something like that.
But my friend needs me. And I know she feels I abandoned her, because I have. Sure, I had to put myself together but this doesn’t change how it made her feel. Now, she is surrounded only by people who either give her drugs or are fine with her abusing any substance. She feels safe in this environment due to habit. And she never liked change, at all. I believe my presence in her life could provide her another point of reference, one that is different to her current approach but in the same time familiar as well.
Of course, I will talk about this with my therapist next week but I would totally appreciate more input. I thought that maybe I could find another group, and maybe if they are fine, I could maybe convince her at some point to come along. The problem is that I am not sure that there is another group like that were I live. I will totally look for it.
If you have any advice or any link with text, audio, video or whatever that you consider relevant, please do share. I hope the above makes some sense, and thank you for taking the time to read this.
Hi There. I’ve been a full time caregiver to my extremely ill wife for like ten years now. I don’t have any backup and I have to be on every single day. I bring this up because I know it is extremely taxing to do this sort of work. And I love that I can help the person I love the most in the world every day be a little less miserable. It sucks but that is life.
Now, I am in a marriage and even then most people think I’m crazy for doing what I do. As far as I can tell, you don’t have any bond but friendship with your friend. That is great and I’m so happy that you were able to be there for them. You did an amazing thing for them and I’m so happy you exist. You are an amazing person for doing it. But they were able to get the help they needed.
You are under no obligation to continue, you’ve already gone way beyond. If they are doing things that harm themselves, you do not need to burn yourself up to help them. This would be true even if they were just relapsing without the self medication. You personally deserve time to yourself.
Just tell them that you love them, and that you think their decision to take substances other than their meds is harmful and as long as they are harming themselves you will continue to be distant. (If that is what you feel).
Anyways, I can’t tell you how great you are and I’m glad you exist. But you deserve to live for you sometimes too.
Thank you so much for your heartening input. For the past 9-10 months it is exactly how I saw things, and in a way I had no choice. Currently, and thanks to the presence of a therapist in my life, I have the impression that I could be able to help my friend and maintain a necessary distance so I don’t loose myself in the process. Maybe. I’m still reflecting on this, as I’m sure you can tell. What is very different this time is that I have my therapist.
In a way this friend she is a sort of a “family by choice”, for lack of better words. Through time she has provided me the very needed sense of safety and security. For example, I have lived in different places within europe, and for me “going home” meant spending time at her place. It’s no coincidence that currently we live very close to each other.
So on one hand I totally understand what you say and I agree. On the other hand I kinda feel like I have an actual obligation to help her. And by that I have in mind very basic stuff as well, like food. Even at her best, she never ate well, nor enough.
Also, I wouldn’t want to neglect thanking you for sharing your personal situation. Reading about it made me wonder for a few things, and I would like to ask you about them. I am not sure how the following questions will sound. I know that at times when I was asked stuff like that I felt so confident that “I got this”, to the point I even got annoyed by the people asking. So I will allow myself to ask the following questions because I believe it’s important. You definitely don’t have to answer anything to me.
Is anyone taking care of you and/or support you? Is there a support group in your area that you (could) participate in? Do you even have the time to do anything else besides caring?
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No. I’ve been very lonely for a long time. I play computer games with friends once a week. That is the extent of my socialization along with an occasional chat with my folks on the phone.
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I don’t have the time or inclination to see other people who are caregivers. The time I do have to myself I spend running (early mornings) and playing games or programming in the afternoons.
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Answered above. About three or so hours a day to do me stuff, but that depends on cooking or other things (I cook everything she eats from scratch, long story why).
There is light at the end of the tunnel for me. She finally has a doctor that seems to know what is wrong with her. One of her symptoms that befuddled doctors for years is gone after starting treatment (she was hospitalized with it). And even without that I’m hopefully going to get a full time caregiver or two in here in the next couple months. I have friends vetting people. So things are looking up for me at least. And hopefully my wife starts to feel better, but if not I’m setting myself up for a more sustainable future. I can’t burn my whole life helping her. I’ve done this for years and I will end up in an early grave if I don’t get help.
Now onto what you asked about. I think your situation is more complex than I originally thought. It is a closer relationship. But if my wife found the cure to her illness, and then started drinking alcohol which brought back her illness, I would have a very very very hard time going back to care for her. We’ve had things that were similar. During a good time she tried to lead a normalish life, but her body isn’t built for it. I warned her and warned her and warned her. This ended up to a relapse that had persisted for five years. I feel a little bit of resentment from that, but not much because she wasn’t doing anything nuts. Just having people over for tea parties, and little things like that pretty frequently. And she wasn’t 50% when she was doing that. But she was doing maybe 20% of what a normal person would do.
If she started to party and take substances that interfere with her medicine I would have a real hard time getting on board with caring for her. She hasn’t made a decision to make her sick. She just is. Fate was cruel to her. And if we had our lives back and she messed with her treatment I would be massively resentful and maybe unwilling to he despite my great love for her.