12 points

A spinal tap. It felt like a toothache in my entire body while a demon choir sang in a high pitched whine.

When I was 11 there was a chance that I had contracted meningitis.

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14 points

Wanted to post the exact same thing. Experienced that a few months ago. Absolutely horrible. And i think the doctor’s instructions made it worse. They told me to slump together and not round out my back. But after several failed attempts I rounded out my back and it finally went in. But that’s only the beginning. The sucking sensation was so awful. It felt like they were trying to drain my brain.

I can still feel it.

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3 points

Yeah they had me round my back, were pretty clear about it, but this was 30+ years ago so maybe some medical knowledge has come around, but I’ve not heard of it.

Sorry you had to go through it, sure wish they had a better way to get spinal fluid for tests.

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62 points

Chronic cluster headache sufferer here. To sum up, I’ve been: Shot, stabbed, shot a second time, broke 7 bones in various appendages, hit with a baseball bat, hit by a car, multiple teeth issues, and migraine headaches, sprinkled for fun.

Basically, I took steve-o’s motto and ran with it (your body is a ride, ride it until the wheels fall off).

None of this comes close to the lightest cluster headache I’ve had. The sheer panic, the knowledge of what’s about to happen, the inescapable amount of pain I know is coming… Fuck CH.

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13 points

What do you do to get put through all that?

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20 points

Made light of someone else’s cluster headaches in a past life

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3 points
*

I just played a lot of sports, some of them extreme (downhill biking). Also, I was born and raised in a truly poor region. And I was just very dumb and tough. And tremendously irresponsible

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18 points

Is there a connection between your lifestyle and the CH? Did one of these cause the other, in whichever sequence?

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5 points

As far as lifestyle, no, there’s no connection. There are several common triggers of headaches, and trust me, I avoid any and all of them.

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10 points
*
19 points

It’s the best remedy I’ve tried insofar as it’s the only thing that has worked as any type of preventative, and the only thing that has disrupted a cycle for me. It doesn’t work as an abortive, in my experience, but it beats every pharmaceutical I’ve tried in every other way.

Sourcing it has been an issue, and it sucks to open yourself up to criminal offense for not wanting to live in pain, but we do what we have to do.

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11 points
*

If you can jump through hoops with doctors and insurance, look into Ajovy. It’s the only preventative that helps with my headaches, and it helps really well. But it’s an expensive auto-injector and I had to run through several meds that don’t work before insurance would approve, and I still need a discount card to help with the copay, but I’ve had about a 95% reduction in headaches, and the ones I’ve had were mostly mild and easy to control with Tylenol or at most a triptan.

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4 points

I have, and I tried one time, about 8 years ago. Efficacy wasn’t what I expected, it took me out of my cycle for about a week. But then I was back on the pain train. Not sure how well it would work for me to be in jail (if I get caught with shrooms) + trying to find a way to pace around in a holding cell. Being such a niche disease I kinda have to hope for pharmaceutical companies to develop proper legal treatment “some day”

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14 points

I’m an episodic CH sufferer. No other pain comes close in comparison. You’re not alone, brother (if I can make that gender assumption given your user name).

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2 points

Stay strong, brother.

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8 points

Getting my nail pulled off.

Also, not exactly painful, but tonic clonic seizure.

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6 points

Some time ago I shitted a fucking big shit it almost broke my shit hole.

Not good.

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1 point
*

Did it ever snap back to normal lmfsho

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17 points

Spinal Stenosis. Woke up one day feeling like my back was not only broken, but that I could feel the broken ends grinding against each other.

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