You wouldn’t pirate a medicine, would you?

56 points

I would if I could!

I will say, there’s something scary about crafting your own medicine, I’d expect medicine to be highly precisely crafted in labs by highly educated professionals and that it’d be difficult and perhaps dangerous to make and take your own medicine. I could be wrong.

The things they write in the article are amazing, people can make their own life savine cure to hepatitis C for about 70 USD for their whole home made treatment, that just works? It seems too good to be true without any caveats.

Oh and, final thought, “Four Thieves Collective”? They really don’t beat around the bush. I like that

permalink
report
reply
37 points

Four Thieves vinegar was supposedly used by four grave robbers to protect them from bubonic plague, each thief added their own herb to the infusion. It apparently worked well enough, they negotiated their freedom by giving up the recipe.

Nowadays, people vary the herbs, garlic is the constant.

It’s no secret herbs like oregano (most savory herbs actually) have antimicrobial properties. When you’re poor and a doctor’s visit is a day or more lost pay, the daycare is paid regardless of attendance, then the uninsured cost of the visit and pharmaceuticals, you learn.

permalink
report
parent
reply
11 points

That’s such a cool backstory, thanks!

permalink
report
parent
reply
6 points

You’re welcome.

permalink
report
parent
reply
23 points

It certainly sounds like it should be more difficult than that (and as far as I, a non-medical professional, know it is) but keep in mind the pharmaceutical industry is worth billions to a select few, and keep in mind back when Eli Lilly’s Twitter was hacked and posted insulin, a substance that costing some people over $1000/month just to live, would be free, their stock dropped 4.37% the next day.

Like I said, I’m no medical anything but like with previous products that have claimed to be medically beneficial, I think it’s worth at least taking a step back and looking at what someone stands to gain by claiming something vital is simple versus what those who claim otherwise stand to lose.

After all, I think we’ve all heard the story of the doctor who, in a fit of desperation, cured his wife’s cancer with bicarbonate of soda and then did so with more of his patients before being sued by Big Pharma.

permalink
report
parent
reply
16 points
*

Hack? It’s not even that. Just musk in his infinite wisdom enabling pay-to-get-checkmark on Xitter so all the fake/satire accounts immediately jumped on the opportunity.

permalink
report
parent
reply
11 points

Oh, was that it? I’d heard someone had hacked the EL Twitter account. That’s even dumber. Thanks for the correction and highlighting how much dumber the fallout was, luckily my misunderstanding didn’t take away from the main point.

permalink
report
parent
reply
16 points

The CLR (the reactor to create the medicine) costs about US$300-500 to make according to their website. Then there’s actually figuring out the software. They don’t sell recipes,as it were, so there’s time involved as well.

I’ve been poking around their site tonight after I saw this posted to another community. It’s worth looking at, imho.

permalink
report
parent
reply

I’d expect medicine to be highly precisely crafted in labs by highly educated professionals and that it’d be difficult and perhaps dangerous to make and take your own medicine. I could be wrong.

You’re not wrong—all of 4TVC’s work is extremely dangerous. Not as dangerous as you’d think, though. And, compared to living a life crushed by debilitating disease or debt, do those risks outweigh the outcome? Probably not.

permalink
report
parent
reply
8 points

It is easy to make if you have the know how and some equipment, also if it is already known what you need to make. For example, aspirin is known structurally (unless I am mistaken), so if you have the chemistry know-how and equipment, you can make your own.

However the tricky part is to get it as a safe medicine to take, that you do not have impurities that could be dangerous, toxic. You will need to be able to make quality and safety checks like that. Which I am not sure how easy that really is.

permalink
report
parent
reply
7 points

White willow bark and devil’s claw root contain naturally occurring salicylic acid, similar to aspirin. Better, but it tastes funky.

ETA: https://www.mountsinai.org/health-library/herb/slippery-elm#:~:text=Slippery elm contains mucilage%2C a,throat%2C stomach%2C and intestines.

Nothing wrong with homemade medicine. Just know what you’re doing. I’ve used many, on myself and now adult child. Grandparents on both sides taught me. Their’s taught them. I’ve used comfrey to heal deep wounds on friendly strays.

permalink
report
parent
reply
2 points

Along the same line of pain management did you know that pretty much all the poppy seed (for ornamental flowers) you can buy at any garden store are opium poppies? You can grow them easily, then macerate the whole plant and extract in off the shelf alcohol and strain it for essentially laudanum which is great for a sleep aide or pain in low to moderate doses. Quite safe as well, obviously if you don’t abuse it.

permalink
report
parent
reply
46 points

As a European, this looks insane to me.

Capitalism working as intended though, undercutting the competition and all that.

permalink
report
reply
16 points

My thoughts exactly. In Europe it’s part of our social welfare

permalink
report
parent
reply
41 points

I’m a process chemist. I do this sort of thing for a living.

These guys don’t even know why what they’re suggesting is so dangerous. Do not do any of this.

permalink
report
reply
63 points

I’m a quality chemist. I test the API’s that process chemists make to be sure they’re right. Yeah, reactions don’t always proceed as intended. These guys do understand the risks, and are only trying to provide an option. Here in the US the insurance companies are perfectly willing to let us die because funding expensive treatment hurts their bottom line. Unless you’re independently wealthy, a small scale reactor at home may become the only option a person has available. Definitely risky, but why not take the chance when corporate America has determined you’re not valuable enough to save?

permalink
report
parent
reply
28 points

Hey guys, many other countries have figured out that healthcare doesn’t have to be a privatized, for-profit nightmare. Perhaps that’s an option worth exploring.

permalink
report
parent
reply
17 points

Plenty have been fighting for it, but there’s an uphill battle against “but that’s socialism and socialism is evil!” and those that personally benefit financially who stand in the way.

permalink
report
parent
reply
14 points

You’re ignoring the fact that it’s nearly impossible to implement this right now. Big pharma and numerous politicians want to keep the status quo for as long as possible. By the time we have more affordable medicine, numerous people would have suffered greatly or died because they couldn’t access the medicine they need. Having solutions that don’t require an entire rework of the healthcare industry is necessary so that we can save as many lives as possible.

permalink
report
parent
reply
12 points

Isn’t medical tourism a thing in the US too; like you can fly to a developing country, get your treatment done by top specialists there and fly back to US and the cost would still be lower than what it would have taken to do in home country.

permalink
report
parent
reply
5 points

Haha, what?!? That’s crazy talk!

permalink
report
parent
reply
17 points

It’s not even funding the expensive treatments, it’s not charging a 1000x markup hurting their bottom line. It’d be one thing if it were genuinely expensive medicine (i would still propose a distribution method other than “capitalism”) but it’s not.

If these meds were available for a reasonable price i don’t think we’d be seeing groups like this.

permalink
report
parent
reply
8 points

Quite frankly, the contamination from pesticide and polluted air, water and dirt on everyday foods (and of course my herbs) are a bigger concern. They’re ubiquitous and unavoidable, now, thanks to big business and apathetic, time-constrained, overworked individuals. So I’m not that concerned by home remedies, although I really only trust my own. Some herbalists/root medics add turpentine to their remedies, for internal use. So I’ll stick to my own or vetted suppliers.

permalink
report
parent
reply
4 points

I’m not disputing the reasoning behind why this is important. But “it is important” does not imply that their solution is the right one.

permalink
report
parent
reply
8 points

There really should be better options, but it’s where this country is currently at, where some home chemistry is something people would have to consider. You’re right, it’s dangerous and certainly has a lot of risks. With some background in it myself and access to resources that the general public doesn’t have, I would still be hesitant to try something I’d cooked up in the basement at home. But, I’m also not at the point where I’m going to die from a treatable but unaffordable disease.

permalink
report
parent
reply
7 points

But the right solution is inconstitutional and anti-corporate! Even socialist and maybe even “woke”! So, this is the option TPTB are leaving us with.

Don’t like it? The second most useful thing to do compared to this is to ready your guillotine. That is the language they understand.

permalink
report
parent
reply
4 points

The “right one” would be open access by governments. But that’s socialism, and bad for reasons ($$$$).

permalink
report
parent
reply
20 points

Could you elaborate a bit?

People make and take illicit drugs all the time. What’s the difference here?

permalink
report
parent
reply
18 points

People make illicit drugs chock full of impurities all the time too, and it fucks people up.

There are standards for purity on pharmaceuticals. Impurities have to be ridiculously low. Lower than you can measure in your garage.

These dudes either don’t know you need to even measure purity or have decided that it’s inconvenient and are ignoring it.

permalink
report
parent
reply
20 points

Or, and hear me out, they know what the risks are and have assessed that they are reasonable when the alternative is death? I do disagree with them asserting they are higher-quality though, or I would at least like to see incontrovertible proof of that.

permalink
report
parent
reply
12 points

Yeah that was my first thought too. While I kind of get the spirit of it, in practice this is so absurdly dangerous IMO. Even if someone has the best possible intentions, there are so many things that could go wrong with this, especially if you include things like long-term effects that aren’t immediately apparent, or interactions with other drugs, especially if you’re taking other home-made pills with potentially unknown ingredients. While it can be frustrating to hear about a promising new medicine that won’t be available for years, there’s a reason why they spend so long testing these things.

IMO the better (but much more difficult) solution is reforming the medical industry so that it’s easier for people to see a doctor and actually afford to get medicine. I’m not usually a fan of big government stuff, but medicine is one of those things that just needs to be kept under supervision I think.

permalink
report
parent
reply
16 points

As someone with a chemistry background I’m surprised you think the industry even takes half these precautions for our current drugs.

Not even talking about ‘state of the art’ meds here were talking the plastics from cars that’ve been around since the 60’s is under studied (but hey its sponsored by oil money so its ‘safer’)

permalink
report
parent
reply
12 points

The global medical community had to beg the US to ban lead from consumer products like paint and gasoline for close to 80 years and our politicians kept taking bribes from lobbyists to ignore medical science… But did we learn from that and ban lobbying? Nope, lobbyists are now bribing politicians to ignore the plastic epidemic and global warming

permalink
report
parent
reply
8 points

I think these guys might be able to hack through the process and get stuff done and think getting other people to follow them will be trivial as well. But just because they didn’t mess up, doesn’t mean other people won’t. A large majority might end up hurting themselves if they follow in their route.

permalink
report
parent
reply
16 points

I mean if you’re going to die without access, roll the dice.

permalink
report
parent
reply
12 points

Or if your access would be bullshit constrained.

Endocrinologists fuck up hormone dosages on a regular enough basis that transfems will buy the estrogen powder, convert to injectable solution, and do it themselves.

permalink
report
parent
reply
3 points

That’s the thing. They have no way of even knowing if they messed up! I’m not even sure the way they could be messing up is a thing they know they should be worried about.

permalink
report
parent
reply
0 points

I’m a dumbass. I don’t do this sort of thing for a living. Do you think it will ever be as safe as properly manufactured and prescribed drugs?

permalink
report
parent
reply
5 points

No. Never. It takes whole teams of people to get it right. (Even then, they sometimes get it wrong.)

permalink
report
parent
reply
33 points

I firmly think this would be a boon for many people; owning one of these is likely a lifeline that even small town physicians could utilize to dispense drugs freely or cheaply to patients in need.

This is something that I think small-town pharmacies could use to create compounds in cases of drug shortages. I think tools and programs and small labs like what are discussed in the article are a positive force for good; and that they should be not only allowed, but encouraged, for many drugs that are expensive, unavailable to someone in need and can be readily synthesized safely with a basic college level of chemistry training by someone in a pharmacy.

I think the potential risks and downsides are small right now; and I think more of it should be encouraged gently so that we can find out quickly what the flaws and limitations are so that we can put regulatory guardrails around it so that people do not harm themselves.

permalink
report
reply
15 points

Yeah, one of the meds they talk about making is Vyvanse. That’s having a serious national shortage right now due to a combination of the DEA and corporate greed. It’s illegal for compounding pharmacies to make it but there’s no technical reason they couldn’t. Same for lots of this stuff.

permalink
report
parent
reply
8 points

So uh yeah as we all know a lot of amphetamines have already been “open source” for a long time.

And we also know the DEA really doesn’t approve of private production… Vyvanse itself only really was created as a produg because of their control of the amphetamine market and their desire for products with lower abuse potential.

If we could get the DEA out of the way anyways, it would make more sense to just make dextroamphetamine as it’s simple, cheap and effective.

permalink
report
parent
reply
8 points

It’s funny because a lot of people really like Vyvanse (that is: lisdexamphetamine) better than the alternatives. It was only made because the DEA wanted fewer people to take regular amphetamines and then a bunch of people responded well to it and the DEA went “wait! Not like that!”

Anyway, it’s on generic now. The only reason there’s a shortage is the DEA.

(Before you say “I’m not in the US and we have a shortage, too!” the drug companies killed all their production lines because the DEA basically gave them an excuse to try to force people off Vyvanse and onto meds that were still under patent.)

permalink
report
parent
reply
3 points

That would be great. My insurance was already not covering Vyvanse super well, but I at least had the extra coupon thing from Vyvanse that was getting it under $80 per month. But the start of this year Vyvanse stopped the coupon since there was a generic and my insurance was also pushing that. Which I didn’t realize was a thing until I was about a week and a half past my refill and just kept getting auto calls from Walgreens that it was delayed.

Found out it was because the generic was on back order and they literally didn’t know when they (or any location in my county or the next one over) would even get it. So I had to demand that they just fill the name brand since I can’t function at work. The pharmacist was like “It will be over $200, are you sure you don’t want to wait?”. And all I could say was “Not like I really have a choice atm if I want to have my meds.” Which while the price was (and still is) fucked. I am glad I didn’t just keep waiting. I just said to put it on my file that I request the name brand if the generic isn’t available.

It does seem that the insurance has also seen this happening to a fuck ton of people as they are back to at least covering what they were before. Which is still costing me around $125 or so a month since Vyvanse didn’t re-instate their coupon. I had thought about going back to Adderall, but it doesn’t last as long and I have heard there have been shortages for both name brand and generic before Vyvanse and its generic.

permalink
report
parent
reply
4 points

Man, in lots of places the you can’t even get the name brand so at least there’s that.

I have heard, don’t know how true it is, that hospital pharmacies have first shot at the supplies so they’re less affected by stuff like this. For what that’s worth.

permalink
report
parent
reply
1 point

Let him cook

permalink
report
parent
reply
19 points

Ok this is pretty cool, I just don’t know if I would trust it yet. I was actually thinking about the concept a bit ago, that I really don’t know what I’m taking if my doctor prescribes something to me… I do really like the concept, though.

permalink
report
reply
4 points

Lab synthesis had it’s own set of problems. Imo, isolation of the"active" agent being one. Slippery elm and white willow teas don’t taste good, but maybe the “inactive” ingredients work with the active ingredient in ways that are simply not studied.

permalink
report
parent
reply

Piracy: ꜱᴀɪʟ ᴛʜᴇ ʜɪɢʜ ꜱᴇᴀꜱ

!piracy@lemmy.dbzer0.com

Create post
⚓ Dedicated to the discussion of digital piracy, including ethical problems and legal advancements.

Rules • Full Version

1. Posts must be related to the discussion of digital piracy

2. Don’t request invites, trade, sell, or self-promote

3. Don’t request or link to specific pirated titles, including DMs

4. Don’t submit low-quality posts, be entitled, or harass others


Loot, Pillage, & Plunder


💰 Please help cover server costs.


Community stats

  • 5.7K

    Monthly active users

  • 3.1K

    Posts

  • 74K

    Comments