I went to the neurologist this morning and after all of his tests, he said he couldn’t find anything neurological that could be wrong with me. He thought it might be behavioral, but that wouldn’t explain the morning heaving. He sent all of my records back to the gastro doctor and we’ll see what they say when they get back to us. So I’m kind of feeling a bit deflated.
Meanwhile, my mother is driving me insane to the point that I had a minor breakdown in the car while she was yelling at me. I had to repeat over and over that she needed to be quiet and she kept saying things like, “you have so many rules!” Finally, I said, '“these are the code words. If you hear me say the exact sentence, ‘you are making me anxious’ she had to be quiet and count to 30 in her head.” She agreed. Angrily. She doesn’t find that reasonable.
She’s also quite hard of hearing despite having hearing aids, so I’m having my wife sit in during these evaluations via Facetime so I can tell my mother “the doctor didn’t say that” and have someone else agree. It still hasn’t worked 100% of the time, but it has worked.
Also, every single time there is a possible diagnosis or she reads something that she thinks sounds like my symptoms (and she’s always wrong about that), she decides that’s definitely what I have and she definitely knows what should be done about it.
This time it’s worse, because she was a psychotherapist and she actually knows a little about behavioral therapy. But I feel really bad for her clients, because they had a totally crazy lady for a therapist. And she kept some of them on for like a decade after she officially retired. They came to her house. So they actually liked whatever she did for them. All I can think is that she has a completely different personality as a therapist.
Oh, she also thinks that the dry heaving every morning is inconsequential and I should just accept that I’m going to have to live with it the rest of my life. What. The. Fuck?
I guess it’s been so long since I’ve spent more than a few hours with her that I forgot how truly nuts she is. And a bit on the narcissistic side.
Edit: Ugh. This fucking guy again.
I am curious about your daily diet.
Fasting responsibly with plenty of water has been used for thousands of years as a healing mechanism or reset for gastrointestinal issues. Perhaps a hard reset may help and then slowly reintroducing things like organic bone broth and working towards nutrient rich whole foods and vegetables, with lots of water and good sleep.
This is coming from a place of love as I am a fan of Flying Squid.
I am rooting for you. Sending good thoughts your way.
This man is a good resource on fasting if you’re interested— Dr. Dominic Dagostino
My ‘daily diet’ is Ensure and V8 with the occasional chai latte or root beer.
If I could eat vegetables, I would eat vegetables.
I recall you saying part of the problem you have is hypersensitivity to the scents of various foods. If you can tolerate V8, I’d assume you can consume vegetables in liquid form in general? You could consider getting a juicer and making some different blends. Personally, when I was starving, I tried surviving on protein powders and very soft foods but that wasn’t working. Eventually I made chicken broth, chicken and blended it up sometimes with potatoes, corn or rice, and it doesn’t sound appetizing but actually worked great and saved me from starvation. I found some neutral tasting protein powders that were good with juice or broth too… pea and hemp worked for me.
It’s tough having parents that aren’t able to understand what you’re going through. I know all about that.
Keep seeing doctors. Specialist. Just keep going, someone will figure it out and you’ll be glad you didn’t give up on it.
Chin up, brother
Always makes me smh when I see young folk bleating about how safe weed is. I’ve known dozens of people that have smoked for 20, 30, 40 years+ and literally every single one of them is totally fucked up in the head, in exactly this kind of way :(
I’m interested in hearing more. So many people I know are seriously fucked up from Pot.
They are willfully ignorant that it is a drug of denial, same as alcohol.
I started smoking in 1986, yes I’m an old cunt 😂
Have watched dozens of friends go off the rails and stopped smoking myself 15 years ago due to going a bit loony every time I smoked
About 10 people I know didn’t give up and are now 50 year old paranoid wrecks, with no exceptions
It fucks you up, there’s no doubt
It looks like on your general information post, you didn’t want medical advice, so I do apologize if I’m stepping on toes here, but in another post, you mentioned Trigeminal Neuralgia.
My speech therapist actually got into her line of work because of experiencing face/head/neck neuralgia herself, (on top of being a singer) and so her practice includes manual therapies on top of the more typical speech therapy practice. (apparently its more popular in speech pathology training in the Boston/New England area, so not sure if its as accessible around you)
I suggest looking into manual therapies for treatment, and speech therapists may be a good place to start looking for it. Its made a world of difference for me and my own SLP.
Also, I’m a little curious about Cyclic Vomiting Syndrome. It’d be a bit of a long shot in your case, but if you feel the strong urge to bathe in really, really hot water, tell your specialists- its an obscure one, usually associated with children and gets written off as a form of migraine in adults.
Speech is not an issue for me, and I do not vomit, so I’m afraid neither of those are relevant, but thanks.
I’m not saying that you have speech issues, but that some neuralgias can be treated with manual therapies, and speech therapists are a good place to look for people trained in face/head/neck manual therapies. Its a disciplinary overlap.
IDK if your type of neuralgia can, but if your doctor scthink its a possibility, then its a direction to go in.
I do know that speech therapist is definitely one of the last specialists I would think to seek out for that kind of specialty. I just lucked out on my own because I was also experiencing speech issues. (It helped me regain neck movement)
I have zero speech issues. I used to do voice overs for a living, so I would definitely notice any change in my speech. There is none anyone, including neurologists, have managed to detect. In fact, I even did a quick gig for an old acquaintance who contacts me occasionally to do voices for his online games a month or so ago.
Oh, she also thinks that the dry heaving every morning is inconsequential and I should just accept that I’m going to have to live with it the rest of my life. What. The. Fuck?
Even morning sickness tops out at 7-9 months, lol. Hang in there. Hopefully they sort you out. Mayo is certainly the right place to be trying.
