Should we stop supporting them with our eyes for taking sponsorships from shady companies?
Edit: I took my first step and unsubscribed from the channel and I will continue to withhold my viewership to those that don’t take better care of the viewers.
Likely doesn’t matter, but I’m on a roll of not giving my money to companies that are immoral so why not do the same with my eyes.
A channel absolutely should be held accountable for the sponsors they accept. Advertisements from YouTube are mostly outside channel owners control, but sponsors are not.
I don’t support channels with unethical sponsors. It can be tough sometimes.
Mark Rober was a big disappointment too. he made a pretty weird video about autism, using the fact that his son is autistic as like qualification for him to talk about it. autistic folks tried to talk to him about the problematic nature of the video in the comments, and he just blocked them. plus, he partnered with NXT for Autism, which does work with Autism Speaks, which is genuinely a hate group that’s trying to exterminate autism, and, last I checked, had no autistic people on the board.
As a parent of a child with Level 1 autism I would never dare speak as an authority on the subject. There’s just so much nuance to it. I could give people a surface level introduction but that’s it. Being a parent does not make people by default into expert psychotherapists.
That being said, don’t discount your expertise in your lived experience. The importance of theoretical and experiential expertise is equal in my eyes.
Maybe not directly correlated, but I would hire someone with 10 years experience over someone who studied the subject for 10 years.
Thanks. Well, we’re in our first year since the diagnosis. There’s still a lot I don’t understand.
As a parent of two kids on the spectrum my messaging has been just this with a resounding “there are legions of autistic people that are NOT represented. Ever.”
Every representation of autistic people you see in the media, or chatting with online are the exception and the fact that they collectively shit on the fact that there are many isolated and struggling is goddamn frustrating.
If you’re autistic and on Lemmy I’m proud of you. My youngest son can’t manage his own diabetes, can’t wipe his ass, needs help showering, has worsening anxiety and ADHD. I could go on.
As a parent I’m supposed to defer to that representation in the media or on Lemmy because “they’re autistic bro.” disgusts me.
My final takeaway. Fuck the DSM V for making Asperger’s the same as Autism. It isn’t. It hurts both parties but I’d argue it hurts Autistic people far more than Asperger’s people.
lol all that just to finish with a definitive statement about autism. Asperger’s has always been an aspect of autism. Dr. Asperger was a Nazi scientist, responsible for deciding who among the neurodivergent would go to the gas chambers. the patients that he deemed to have “mild enough” autism to be used for labor, were called “Asperger’s”.
Thanks for sharing your experience. It sounds like you have your hands full and as a parent I can only empathize. I totally hear you about media representation missing the mark. We have some roadway to make. I’m surprised how many parent friends we have that are relatively clueless (even though I must admit, until this January when we got the diagnosis I was too).
My little one started group therapy about two months ago and I’m super grateful even though the journey ahead is still quite long.
On the Asperger’s topic: I was under the impression Asperger’s is no longer in use as a diagnosis and was folded into the ASD (Autism Spectrum Disorder). At least that’s what we learned this year throughout the diagnosis process.
Stay strong brother (or sister)!
Try to understand that influencers and content creators are human beings and not infallible. I don’t think Mark or Derek are the greatest people in the world, but they are trying to put educational and entertaining content out into the world, and don’t seem to be malicious in intent.
Give them a break and see where they land down the road. If they turn out to be trash, judge em all you want. As someone that doesn’t spend the time and effort to pass my experience on to others, I’ll give them a bit of wiggle room on the politics associated with operating in the public attention economy.
made a pretty weird video about autism, using the fact that his son has it as like qualification for him to talk about it. folks with autism tried to talk to him about the problematic nature of the video in the comments, and he just blocked them.
So typical Autism Parent™ then lol it’s like they can’t help but make it about themselves… 🙄
As a parent of 2 children on the spectrum I need to give you a well thought out “fuck you” in response.
My experience online is a lot of you “champions” for autism are only speaking for yourselves and those like you, which is to say the ones that have some means of independence be it verbally, physically or emotionally. I have one son like that. He’s Asperger’s. He will have challenges, but he will live a long and productive life with all the proper tools. My other son is your “traditional” autistic. He is thankfully verbal but at this point there is no plan for him to be independent ever. As parents we hope for the best and take every day at a time.
To assume that our opinions and decisions are derived as “making about ourselves” is part of the problem. Everything I have done since his birth has been to NOT make it about myself.
The last thing I need is people like you punching down because you can’t look past your own goddamn nose.
he’s not talking about parents of autistic children. he’s talking about parents of autistic children who make that their main personality trait, walking around referring to themselves as “autistic moms”, intentionally using confusing language so you can’t tell if they’re autistic, or if their child is autistic. sort of like Munchausen by Proxy but you don’t have to fake it
Have you considered working memory training as a method for helping your son become more functional?
Rober is just a con man that pretends to be science to sell stuff to people.
He also ripped off KiwiCo IIRC.
Here is an alternative Piped link(s):
Piped is a privacy-respecting open-source alternative frontend to YouTube.
I’m open-source; check me out at GitHub.
Veritasium is YouTube propaganda. It’s well documented - Derek takes sponsor money and gets people killed in the process. I blocked Derek on all platforms the day Tom put this documentary video out.
Here is an alternative Piped link(s):
Veritasium is YouTube propaganda
Piped is a privacy-respecting open-source alternative frontend to YouTube.
I’m open-source; check me out at GitHub.
Funnily enough the person that made this video had a little controversy on the vape-o-nomics video when he was talking about how subscription services were bad but then immediately pivoted towards an ad read for a subscription service.
Eventually it was removed (without a comment talking about, it happened silently) but still this stuff reaches everyone eventually.
Google got rid of the dislike count on videos for a reason, holding content creators accountable is absolutely what should be done. It’s horseshit to think that content creators shouldn’t be accountable for the sponsorships they take.
I’m out of the loop, what did Better Help do?
Sharing users’ mental health information with advertisers and connecting LGBT users with Christian faith-based therapists are the two big issues I’m aware of
Better Help is also awful for the therapists, it basically turns them into contracted gig workers and they’re less invested in their clients’ success. It’s also awful for the clients, because going to therapy is hard and requires hard work and facing some difficult things. The platform makes it overly easy to switch therapists whenever, and a sizeable chunk of people will jump shark when challenged, continuing to throw money down the Better Help hole with no progress to show for it
Is there a source for this? I’m generally very positive on therapy and helping people get access to it, but fuck them if that’s the case (and fuck the US healthcare system in general. Although I will say that where I’m at now, Japan, is even worse with mental healthcare not being covered by insurance (only psychiatry is covered; some psychologists having sliding fee scales but sometimes it’s students and, if you don’t speak Japanese well enough to articulate your issues in the language, then the premium for foreign language support is real)).
Just as an FYI: although laws are strict about US-based therapists practicing only in states where they are licensed, there are no laws regulating international practice of psychotherapy. If the people you’re talking about have a hard time in Japanese, they may be able to to find a telehealth therapist in their country of origin who speaks their native language and is embedded in their native culture. You have to deal with timezone shenanigans, but it beats going without. Something to consider.
Here is an alternative Piped link(s):
The “BetterHelp” YouTube Virus is BACK
Piped is a privacy-respecting open-source alternative frontend to YouTube.
I’m open-source; check me out at GitHub.
