From what I’ve seen, here are some of the arguments against self-diagnosing:
- Allistic people using autism as an excuse for their behaviors/difficulties, then denying the difficulties that actually autistic people experience and misrepresenting autistic people.
- Narcissistic and psychopathic people pretending to be autistic to manipulate others, including actually autistic people.
- Misdiagnosing themselves when their difficulties are actually related to other root causes, such as prolonged childhood abuse.
In the first two arguments, the problem with self-diagnosing is the social impact it has on others, including the autistic community. I can see why some people are against self-diagnosing since it could make their lives harder, especially autistic people. The last one is more about helping the individual properly understand them-self and developing a proper course of action to improve their lives, so it’s an argument rooted in care.
I am not entirely against self-diagnosis. However, I think it could be re-phrased to “self-identified” since “diagnosis” is a medical term. It would be like a person saying, “I’m self-diagnosed with depression.” That person isn’t diagnosed with depression, though they very well may be depressed. It’s really just a pedantic issue from my perspective. Regardless, I don’t really care one way or the other because I understand what they are saying and think that an actually autistic person self-identifying as autistic is valid enough. Still, while I wont invalidate someone for self-identifying by gatekeeping autism, I tend to be a little cautious at first because of my experiences with people pretending to be autistic. In this case, I think the issue is that some jerks just can’t let us have nice things.
I can see your point here, but what is to stop somebody from begaving that way and just claiming to have an official diagnosis, rather than a self diagnosis to begin with? There’s always going to be people who behave in bad faith in any group, People who are going to lie and manipulate are just going to do that. There’s no way to avoid that, that doesn’t result in alienating people with systemic barriers to diagnosis. With what we know about the bias in diagnosis to begin with as well as all the other reasons people have pointed out. I think rejecting self diagnosis as a valid means of finding support, and community is going to harm more people than keep out bad faith actors.
I think that the biggest issue is that in many places (the UK is a personal example), the services are so utterly over stretched and overflowing capacity that there is literal years long waiting lists in some parts of the country.
In York area, unless you become a priority case due to being a risk of self/other harm then they have a waiting list of over 4000 people, with the capacity to only process 160ish per year. I’ll let you figure out that maths by yourself. It’s fucking hopeless. So with an official diagnosis effectively impossible to self ‘diagnose’ is your only option and you have to hope that the people around you are supportive enough to trust you and help regardless.
Not to mention the difficulty in even getting a referral to an assessment for the diagnosis. The steps in place are practically brick walls to us with the requirements needed to fulfill. You need to get an appointment with your GP (good luck since it’s not an emergency), then you need to hope they have some understanding/experience enough to identify if you would be suitable for a referral, then you need to convince them you need a referral, then you have to wait for the specialist to pick you up and be put on the wait list, blah blah blah.
Why go through all that energy when you can just ‘diagnose’ yourself and carry on with struggling the way you always have. After all, as long as you keep your routine it’ll be fine…right?
Except it fucking isn’t, but what other choice is there?
Ah, that makes sense why people feel so strongly about advocating for self-diagnosis. It also makes sense why some people are really concerned that they weren’t autistic enough at their assessments because re-evaluation could be near impossible. That’s such a disservice to the autistic community. What do they expect people to do while they wait for assessment? It’s not like people are doing great and think, “Maybe all my success is because I’m autistic.” If this comes up, there are probably some considerable difficulties going on for someone to consider they’re autistic. I was not aware of that and sorry you’re in that situation. Thank you for sharing.
If you have the energy to endure the process, it might still be a good idea to get on the wait-list. Three years are going to go by whether you’re on it or not. However, I could see being pretty distraught should the GP be invalidating by denying a referral and potentially having that in your national medical record. Another idea would be to maybe find a way to save up little by little to see a private provider, even if it takes a few years.
BTW, I want to be clear that I’m thinking of ways you could get assessed only because the diagnosis was very helpful for me to make sense of things and access proper autism services.
I’m currently not sure how I feel about a proper official diagnosis at this stage. With the stigma around mental health illnesses 8 worry it’ll just be used against me. My journey with this is still very young (read: days) so a lot of stuff I’m finding out quite fresh and this particular nugget of info was as soon as this very morning.
There are other routes you can go through such as charities, the main one being ‘Right to Choose’ who support you with how to approach your GP, templates for letters, what to say to the various people you need to speak to and such. They also act as a tool for you to find support groups, specialists etc etc.
Sounds amazing, right? Hell yeah. Except they’re so utterly overflowing they’ve been closed to new referrals/applicants since the end of August.
2 weeks too late. Honestly, man. You can’t make this stuff up.
For the first two things, there’s always going to be manipulative assholes that grasp onto anything they think will garnish sympathy. Rather than targeting otherwise innocent behaviour that goes along with manipulation, we should be educating people about what manipulation is and how to avoid it.
For mental health issues, it comes down to, your mental condition might explain your behaviour but it doesn’t excuse it. If your behaviour is causing me harm, I don’t need to accept that for any reason. All a diagnosis does is provides you with more information about how to manage your shit.
If someone uses a diagnosis to justify their behaviour, they are essentially saying that this is the way they will always be, which IMO is even more reason for others to take their own steps to mitigate those behaviours, which might mean cutting them out emotionally, cutting them out entirely, or getting help from others to do those.
Don’t set yourself on fire to keep others warm and stop letting them manipulate you.
The term “identified” is used as an insult, particularly when referring to transgender people, to imply that they aren’t really correct. I don’t think it’s appropriate to use that in the context of autism, because many of the people who do believe themselves to be autistic do go on to get professionally diagnosed. I became interested about 20 years ago in the possibility that I may be autistic, as I met all of the criteria, but only recently did I actually get the resources to pay for a diagnosis. It cost me nearly $3500.
The problem is that self-diagnosis IS valid, when it is valid, and is not valid, when it is not valid.
The term “identified” is used as an insult, particularly when referring to transgender people,
I haven’t heard that before. Is the current progressive trend to avoid using the term “identify” entirely? If so, let’s say I was completing an interview, and I needed to ask someone what ethnicity(ies) they identify with, how would I ask that?
It varies in practice. Most people I see using identify, including many trans people, are well-intentioned and think it’s the preferred polite language without thinking too hard on the implications of it.
However there are definitely anti-trans people who will use it pejoratively, which I presume is where that wording originated.
I’ve never once heard of it used like this. Could you provide an example please? I’m not sure I understand.
Bigots commonly insist that trans people use “I identify as” rather than “I am” when the transgender people are giving their gender, because the intention is to deny those people the ability to be seen as their preferred gender and instead give the impression that those people are impostors, implying that “identifying” is more akin to “relating” instead of categorization.
Insisting that an ostensibly autistic person use “self-identified” instead of “self-diagnosed” would have the same effect.
If you want to use a proper word that’s not “diagnosed”, “self-assessed” would be more accurate.
You need a third party to evaluate it.
It’s almost impossible to be truly objective when looking back at your own actions and how you reacted.
My mother has mental health issues which I personally think are due to BPD. She thinks her problem is just that she pulls her hair and feels stressed, and has absolutely no awareness of her other abnormal behaviours.
It’s kind of on the opposite side of self diagnosis but I think it’s still relevant, because ultimately her internal logic makes all of her actions seem normal to her and she can’t view it objectively.
Who wrote this rubbish? Doctors aren’t willingly recommending abuse, and most of them refer to specialists.
Doctors aren’t willingly recommending abuse
Boomer doctors aren’t dead yet, and haven’t learned anything since the 70s.
But seriously, think about whatever industry you’re in. Surely there are the ‘old guys’ who haven’t kept up with the progress, but are still around kind of doing a poor job of things. Not all old people, surely, but a fair number. At least, that’s how it is in IT.
That still doesn’t mean they recommend “abuse.” Every doctor in the US must renew their medical license every few years and that means taking continuing medical education classes. Nobody is recommending therapy from the 70s anymore.
Also, it’s still vague about what this “abuse” is so it’s hard to debunk a vague accusation.
ABA therapy. That is the abuse being referred to.
Also, it’s still vague about what this “abuse” is so it’s hard to debunk a vague accusation.
So you’ve already made up your mind that it’s something that needs to be debunked before you even know what “abuse” refers to?
It’s shit like this that keeps hurting credibility of anyone defending established practices, right or wrong.
I have a distinct recollection of professors at a UNC Chapel Hill department cocktail party comparing notes on their psychoanalysts in the late 2000’s.
Ahh yes old people are dumb and bad, what a highly enlightened take you have there, you spend way too much time online
Anyone who willingly lumps a bunch of people into a one size fits all category tells me all I need to know about that person
Damn, it sounds like you’re lumping a bunch of people into a one size fits all category, telling me everything I need to know about you. (I believe that 70% of people are liquid, so that should tell you everything you need to know about me)
Depends how long ago. There’s still an old ped in my city that doesn’t believe in autism and ADHD.
If he or she is still licensed, report them to the state medical board. They should be referring people to a psych specialist anyway.
ABA is abuse and very commonly recommended to autistic people (or more often, forced on autistic kids by parents).
I thought it stood for American Bar Association. I still do, since no other definition was offered. I would disagree that the American Bar Association is abuse.
Please show me where a currently licensed doctor is referring people to it.
I just searched “aba therapy near me” and “aba therapy clinic” and got dozens of results. They’re not close-but-not-exact matches, either. These are places that literally describe themselves on their home page as focusing on delivering ABA services to children.
Considering referrals issued by a licensed doctor are considered confidential, and illegal to share without patient consent in many areas, the ability/inability to present such a referral as evidence is not a good criteria for whether it happens or not. But the prevalence of specialists that offer these services certainly indicates that specialists are finding it a profitable business model. I suppose it is possible that the vast majority of their business does not come from doctor referrals, but that seems unlikely.
Also on self diagnosis: unfortunately too many people.read a Facebook post and then self diagnose thelrmselves with
Not trying to argue against this image, I’ll skip that as I don’t know much about it, but yeah. I actually know a few people who self diagnosed with autism, ocd and whatnot and they’re just in it for the attention it gets them
I looked for a diagnosis. Called lots of providers and, in summary, they only providers that could accept me were expensive and lengthy. I don’t have light or sound sensitivity (which isn’t required) so I don’t need accommodations. I don’t have trama and have worked through most of my issues so I don’t need therapy. There’s objectively no benefit to getting a diagnosis for me other than claiming I have ASD. And there’s some negatives, especially if traveling abroad. So yeah, with that, I don’t want a professional diagnosis. I did lots of research and checked more than enough boxes in the DSM-5 to validate myself. Others’ validation isn’t worth a couple thousand dollars and hours of consultation over a year. If I needed support, it might be worth it, but personally, I feel I’m in a good place.
I was searching for why I am different and found that it had a name and there are other who have similar experiences that I can relate to. That’s good enough for me.
I get gatekeeping and that people may be spreading false information or making the community look bad. Call them out then. Otherwise, an educated self-diagnosis isn’t harming anyone. Let people be at peace with their sense of self.
