america is so fucking based man

in any proper country that company at least gets forced to pay by the government then ordered to shut down forever due to wanton cruelty. all the employees get generous severance except whoever made that call. depending upon your view of carceral punishment there are a few ways to go with that guy.

-26 points

The misfortunes of some are the business of others, that’s how capitalism works, I don’t know why some people are scandalized.

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14 points

You don’t know why people are shocked that the system they pay into for healthcare chooses not to save them? You’re not shocked that we choose to kill babies?

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-18 points
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I do but it’s just how capitalism work, maybe people should think about adopting other economic system instead of complaining about unfairness, the problem it’s if they have the chance they will do the same.

Complaining about how the system isn’t fair and at the same time push the “greatness of capitalism” it’s just a basic contradiction.

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4 points

why is proper healthcare possible anywhere except there? Capitalism is not a us specific thing, so it can’t be relevant. We have tons of counterexamples to your argument

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9 points
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I think you’ll find if you change your framing, we are mostly agreeing with you.

Or in other words, people aren’t down voting your message, they’re down voting your delivery.

Just my opinion. Many here dislike capitalism, but they dislike callous disregard for tone more. Humans are funny like that.

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1 point

maybe people should think about adopting other economic system

How exactly does one do that?

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5 points

May the insurance agency burn down with all employees inside 😊

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6 points

It’s not the employees fault. I know a person who’s an actuary at an insurance company, they fight for each case and every day they’re depressed at how little they can do but they fight for people when and where they can. Honestly it’s a testament to the fact they’re still there and how much they have to compartmentalize every day, well at least until beer thirty rolls around and we used to get into a bitchfest about how shitty the health insurance system is.

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4 points

Executives maybe but not the employees.

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1 point

There may be collateral damage durring the executive purge, thoese who are complicit may face the AI and it’s wrath.

Joking of course. It’s gonna be fun to see when the AI start taking THEIR jobs though 😂

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0 points

“Based” isn’t the word I’d use.

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113 points

Important facts for people that didn’t bother to read the article: it’s $2.1m each, so total is $4.2m. The coverage of the drug was cut on a schedule that was determined in January. The diagnosis of the disease was 5 days after the cut.

The cost isn’t an issue in my mind, but I think good to know how much the parents are in for. Insurance companies exist because of these costs, they should have to cover any treatment that has significantly higher success rates, especially when the lack of coverage will result in death, or other life-long consequences.

The timing and schedule are important as the headline makes it appear this decision was in response to these kids being born with the condition, when in fact, there was no diagnosis at the time of the cut and these kids were still months away from being born when the decision was made.

Final bit, though this wasn’t in the article, the drug is being covered for these kids. It took pressure from the state government apparently, or maybe just all the bad press. Shouldn’t change anyone’s opinion on POS insurers, but it’s at least good news that these kids aren’t condemned to a death sentence.

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53 points
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The cost isn’t an issue in my mind,

How is it not?

Insurance companies exist because of these costs, they should have to cover any treatment that has significantly higher success rates, especially when the lack of coverage will result in death, or other life-long consequences.

Yes, they should. But unchecked costs are a big reason why health insurance is so awful right now. We shouldn’t tolerate this price gouging by pharmaceutical companies.

And don’t tell me it’s all about R&D.

https://www.treatmentactiongroup.org/resources/tagline/tagline-fall-2018/pharma-lies-people-die-myth-busting-fact-sheet-on-medicine-development-and-pricing/

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17 points

What legitimate reason would there be to price drug like that? Is that what the r&d cost to create it? Greed. Thats where 99.9% of cost issues end up for

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-4 points

Modern drugs cost tens of millions of dollars to develop at a minimum, and can easily reach into the billions.

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9 points

If only there was a class of people with so much money we could tax the whole amount from them and they wouldn’t even notice.

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14 points

And usually subsidized with public money.

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0 points
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Modern medical research targeting worldwide drug distribution is ridiculously expensive due to legislation in different countries. Gone are the days when a pharmacist could give random shit to the unsuspecting clients to see if they would survive their walk home. And I don’t think you’d want these days to come back.

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23 points
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Zolgemsma is a modified version of adeno associated virus and has to be grown under specific conditions. It costs $500k-$1m per production.. It’s also a one time injection that functionally cures the person of the disease. There are a couple other options but for comparison, the other therapeutic is Spinraza which is an intermittent intrathecal infusion which is $805,000 for the first year of therapy and $380,000 per year thereafter for the rest of your life.

To be clear, I think we should bear the actual costs of research, development, and manufacture as a society and not profiteer off the sick, but there are some contributory reasons for the price.

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1 point
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There’s always more to the story isn’t there? Else it wouldn’t be called clickbait

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4 points

yeah this video was helpful to understand the complexity in manufacturing AAVs, namely the raw size of the proteins manufacturers need to create & interweave.

👆 that little dot in the lower left corner is Aspirin (timestamp 12:00)

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7 points

If it costs 1 million to produce then anything above a 1.1 million cost is still pure greed.

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1 point

thats less than nine months ago and insurance would have access to maternity records

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2 points

Not sure how that’s relevant, can you explain a bit more about what you’re thinking? They couldn’t have been diagnosed with a need for the medication at early-stage pregnancy.

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1 point

couldn’t have been

how do you know?

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1 point

Not diagnosed but if there were early indicators of a problem that could fit into a statistical/AI model that they had a large probability of a range of problems.

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3 points
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-1 points
Removed by mod
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2 points
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There’s no reason to be rude. See Rule 1.

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1 point

It’s a sarcasm

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0 points

There are already comments claiming this, thanks.

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4 points

One of the earliest uses of based is by 4chan users to describe things that were Nazi adjacent or fascist that celebrities and politicians would say and do. It was “based” because the idea is that they were doing the “right” thing even though it was unpopular often doing things like being ok with needless deaths because it also meant it pushed their fascist agenda. I think op is using it ironically in this case like those 4chan cretins use it.

Since then it’s been co-opted as the general Internet meme and that’s how most people know it now.

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2 points

I only know it as “I approve of this”, not “lol, I don’t approve of this, but I say I am to be hilarious”. This is the danger of adopting this Nazi Internetspeak to be funny.

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1 point

Yes but then when someone says <clearly horrible awful thing> is based, it’s blatantly sarcasm

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